Member Minute with the Alzheimer’s Association
Did you know that Alzheimer’s is the 6th leading cause of death in the United States, taking the lives of more than breast cancer and prostate cancer combined each year? This month is Alzheimer’s & Brain Awareness Month, and Executive Director Fe Vorderlandwehr is featured in this Member Minute to share ways you can get involved to find a cure. And be sure to mark your calendar for Oct. 13 for the 2018 Walk to End Alzheimer’s at INTRUST Bank Arena.
Please tell us a little bit about your organization.
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer’s care, support and research. We work on a global, national and local level to provide care and support for all those affected by Alzheimer’s and other dementias. As the largest nonprofit funder of Alzheimer’s research, the Association is committed to accelerating the global progress of new treatments, preventions and ultimately, a cure.
Our vision is a world without Alzheimer’s. Our mission is to eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
The Association is the leading voice for Alzheimer’s disease advocacy, fighting for critical Alzheimer’s research, prevention and care initiatives at the state and federal level. We diligently work to make Alzheimer’s a national priority.
The Alzheimer’s Association was founded in 1980 by a group of family caregivers. Today, the Association reaches millions of people affected by Alzheimer’s across the globe through our headquarters in Chicago, a public policy office in Washington, D.C., and a presence in communities across the country. The local chapter serves 68 counties throughout central & western Kansas and is located in Wichita. They operate with a staff of 8 and countless volunteers.
Describe your organization’s most recent success.
We recently hosted our inaugural Memory Gala. This first-time event brought together over 340 civic and community leaders. It allowed us to not only expand our reach and share our message with many for the first time, but it also raised over $384,000 to help fund local care, support and research programs.
Also, on June 1, Governor Jeff Coyler signed the Executive Order to authorize the development of an Alzheimer’s Kansas State Plan. With the Order, all 50 states now have a state plan.
To what do you attribute your success?
We have a great Board of Directors and passionate committee volunteers representing many different industries and interests. But we all are working together to achieve our vision of a world without Alzheimer’s.
What is something people may not know about you or your organization?
We provide respite grants for caregivers. While care giving can be rewarding, it can also create tension and exhaustion. Without some time off, the mental and physical health of the caregiver becomes affected. This could reduce the quality of care for the loved one. The purpose of the Respite Assistance Program is to provide family caregivers time to do necessary or desired activities. The program helps pay for care for the loved one while the caregiver gets a short break, respite. The program can allow the caregiver to do things such as: go to the beauty shop, have lunch with a friend, maintain the garden, visit the physician, take a nap, and more. With this program, we hope to ease the burden on families by helping with some of the costs.
What differentiates your organization from your others in similar spaces?
We are the largest Alzheimer’s-related nonprofit that provides care and support programs AND research.
As the largest nonprofit funder of Alzheimer’s research, the Association is committed to accelerating the global progress of new treatments, preventions and ultimately, a cure. Our peer-reviewed research grant program has invested over $385 million in more than 2,500 scientific investigations since 1982.
Where do you see your organization in five years?
It is important that while we look toward funding research we continue to provide care and support. The Association will contribute to research breakthroughs that are life-changing for people with Alzheimer’s disease by driving the international research agenda.
The Association will contribute to a dramatic increase (e.g., to 90 percent) in the accurate and timely diagnosis of people with Alzheimer’s disease and other dementias and a significant increase in the number of people with dementia and their caregivers who receive affordable, high-quality care and support (e.g., to 80 percent of people with the disease).
Is your company involved in any community/civic activities?
Participating in community activities is something that we enjoy. We have been a part of the Wichita WagonMaster’s Chili Cook-Off, ICT Open Streets, Wichita Women’s Fair, Wichita Pride, and Final Fridays in the Douglas Design District.
What about your organization are you most passionate?
Finding a cure! And the path toward a cure is research. The Alzheimer’s Association is one of the largest funders for Alzheimer’s research, behind only the American and Chinese governments.
What do you find most valuable about Chamber membership?
Being part of the Chamber not only helps us with community outreach and awareness but with community engagement as well. Outreach and engagement are two separate things. The Chamber allows us to reach more businesses as well as engage not only them but ourselves with the community.
What is your favorite Chamber event, program, or service and why?
The Sunrise Scramblers are a wonderful way to start the day. Getting to network and know members from the community, as well as hear from great speakers on relevant topics are reasons why we are part of the Scrambler Club and we reserve a seat at breakfast for the entire year!
What has Chamber membership brought to you and your organization?
It has given us access to business and community leaders and allowed us to explore partnerships that can be mutually beneficial.
On a scale of 1 to 10, how strongly would you recommend Chamber membership to a colleague?
10 – Really the question isn’t ‘why to join’ but ‘why not join’. The Chamber offers so many different ways to get involved and meet fellow business colleagues and leaders. You can choose how to be involved and what areas interest you.
What is the greatest challenge in operating a nonprofit?
Outreach. We have a small staff of 8 individuals and cover 68 counties in Kansas. We just can’t physically be everywhere, however, we have great volunteers and ambassadors that help us with education classes, programs and fundraisers. We are always looking for more passionate volunteers to help us reach and engage our community members in central and western Kansas.
How can people get involved with your organization?
We have many volunteer opportunities that range from fundraising, marketing, education, office help, special events, etc. If you are looking for a way to get involved, please give us a call. Whatever your interest or skills, I know there is a volunteer opportunity. For example, we have some volunteers that help sew “busy blankets” for those with Alzheimer’s, some help download iPods with music for our Roth Project, some help with data entry, some help plan events, and so much more.
What is the best thing about doing business in the Wichita area?
I’ve always described Wichita as the “largest” small town. Even though there is close to 400,000 residents in Wichita (and over 640,000 total for the metro area), there is still a strong sense of community and of helping your neighbors and fellow citizens. I feel we get the best of both worlds.
Walk to End Alzheimer’s App. Staying up to date with your Walk to End Alzheimer’s fundraising progress is easy! Just click on the My Fundraising Progress button to get real-time goal and raised amounts. Take advantage of all your potential donors with email addresses by sending them an email donation ask. Schedule posts on Facebook, too! You can choose from a list of weekly messages or other timely messages to automatically post on your Facebook Timeline and your friends’ News Feeds just like any posts shared from the Facebook app.
Favorite business book?
Monday Morning Leadership by David Cottrell. It is a short read but a great read – a great guide to being a better leader and mentor.
Is there anything else you would like to include?
- Our professionally staffed 24/7 Helpline (1.800.272.3900) offers information and advice to more than 300,000 callers each year and provides translation services in more than 200 languages.
- We host face-to-face support groups and educational sessions in communities throughout central & western Kansas.
- We connect people across the globe through our online message boards, ALZConnected®. Our online community is ready to answer your questions and give you support.
- We provide caregivers and families with comprehensive online resources and information through our Alzheimer’s and Dementia Caregiver Center, which features sections on early-stage, middle-stage and late-stage caregiving.
- Our free online tool, Alzheimer’s Navigator®, helps those facing the disease to determine their needs and develop an action plan, and our online Community Resource Finder is a comprehensive database of programs and service, housing and care services, and legal experts.
- Our safety service, MedicAlert® + Alzheimer’s Association Safe Return®, is a 24-hour nationwide emergency response service for individuals with Alzheimer’s or a related dementia who wander or have a medical emergency.